Acknowledgements
Thank you to our partners, content experts, and non-profit organization and community representatives who assisted with the Brain Health in Ontario Project.
ICES and Data Partners
ICES is an independent, non-profit research institute whose legal status under Ontario’s health information privacy law allows it to collect and analyze health care and demographic data, without consent, for health system evaluation and improvement. This study contracted ICES Data & Analytic Services (DAS) and used de-identified data from the ICES Data Repository, which is managed by ICES with support from its funders and partners: Canada’s Strategy for Patient- Oriented Research (SPOR), the Ontario SPOR Support Unit, the Canadian Institutes of Health Research and the Government of Ontario. The opinions, results and conclusions reported are those of the authors. No endorsement by ICES or any of its funders or partners is intended or should be inferred.
Parts of this material are based on data and information compiled and provided by CIHI. However, the analyses, conclusions, opinions, and statements expressed herein are those of the author, and not necessarily those of CIHI.
Parts of this material are based on data and information provided by Ontario Health (OH). The opinions, results, view, and conclusions reported in this paper are those of the authors and do not necessarily reflect those of OH. No endorsement by OH is intended or should be inferred.
Parts of this material are based on data and information provided by Cancer Care Ontario (CCO). The opinions, results, view, and conclusions reported in this paper are those of the authors and do not necessarily reflect those of CCO. No endorsement by CCO is intended or should be inferred.
Content Experts
We acknowledge the contribution of the following content experts with whom we consulted with to better understand the brain disorder findings for clinical relevance, validity and robustness. They provided invaluable feedback that significantly improved the way in which we communicate and present the data.
Agessandro Abrahao, MD, MS
Associate scientist, Evaluative Clinical Sciences, Hurvitz Brain Sciences Research Program, Sunnybrook Research Institute / Assistant professor, Department of Medicine (Neurology), University of Toronto
Anna McCormick, MD, FRCP(C)
Associate Professor and Medical Director PSU, Department of Paediatrics, University of Ottawa
Darcy Fehlings, MD, MS, FRCP(C)
Professor, Department of Paediatrics, University of Toronto / Chair, Developmental Paediatrics, Bloorview Children’s Hospital Foundation / Senior Clinician Scientist, Bloorview Research Institute
Emily Walker, PhD
Adjunct Professor, School of Public Health, University of Alberta
Jorge Burneo, MD, MSPH, FAAN, FAES, FRCPC
Professor, Neurology, Biostatistics and Epidemiology, Western University / Chair, Jack Cowin Epilepsy Research
Laura Maclagan, MS
Senior Epidemiologist, ICES
Lauren Switzer, MS
Research Project Manager, Holland Bloorview Kids Rehabilitation Hospital
Mario Masellis, MD, PhD, FRCPC
Scientist, Evaluative Clinical Sciences, Hurvitz Brain Sciences Research Program, Sunnybrook Research Institute / Assistant Professor, Neurology, Department of Medicine, University of Toronto / Clinician-scientist, neurology, department of medicine, Sunnybrook Health Sciences Centre / Research Scientist, Neurogenetics, Centre for Addiction and Mental Health
Paul Kurdyak, MD, PhD
Assistant Professor, Department of Psychiatry, University of Toronto / Chair, Addiction and Mental Health Policy, Institute of Health Policy, Management, and Evaluation, University of Toronto / Director, Health Systems Research, Centre for Addiction and Mental Health / Adjunct Scientist, Program Lead, ICES
Rick Swartz, MD, PhD
Scientist and Associate Professor, Sunnybrook Health Sciences Centre / Clinician-scientist, Evaluative Clinical Sciences, Hurvitz Brain Sciences Research Program, Sunnybrook Research Institute / Scientist, Canadian Partnership for Stroke Recovery / Director, Sunnybrook Stroke Research Unit / Associate Professor, Department of Medicine (Neurology), University of Toronto
Susan E. Bronskill, PhD
Professor, Institute of Health Policy, Management and Evaluation, University of Toronto / Senior Scientist and Scientific Lead, Life Stage Program, ICES / Professor, Division of Epidemiology, Dalla Lana School of Public Health / Associate Scientist, Sunnybrook Research Institute / Adjunct Scientist, Women's College Research Institute
Susan Jaglal, PhD
Professor, Institute of Health Policy, Management, and Evaluation, University of Toronto / Chair, Toronto Rehabilitation Institute, UHN at the University of Toronto / Professor and Vice-Chair Research, Department of Physical Therapy, University of Toronto / Senior Scientist, Toronto Rehabilitation Institute / Professor, Dalla Lana School of Public Health / Adjunct Senior Scientist, ICES / Senior Researcher, Women’s College Research Institute
Tarek Rajji, PhD
Executive Director, Toronto Dementia Research Alliance / Professor, Department of Psychiatry, University of Toronto / Chief, Adult Neurodevelopment and Geriatric Psychiatry Division / Clinician Scientist, Campbell Family Mental Health Research Institute
Yan Yuan, PhD
Associate Professor, School of Public Health, University of Alberta
Community and Non-profit Organizations
We would like to thank the following organizations for their input to help contextualize the brain disorder findings and providing feedback on the degree to which the information collected using health administrative data from the ICES data repository aligns with their experience with people with a brain disorder. Individuals from each organization who participated in the consultations are indicated in parentheses.
(Kim Barry)
(Shawn Paron, Kyle Fitzgerald, Jessica Hogle)
(Michelle McDonald)
Brain Tumour Foundation Canada
(Sarah Rogers, Sue Ruypers)
(Anar Pardhan)
(Paul Raymond)
Heart and Stroke Foundation of Canada
(Patrice Lindsay)
(Shauna Beuadoin)
Institute for Advancements in Mental Health
(Erin Boudreau, Sophie Hwang)
(Linda Lee)
(Pamela Kanellis, Julie Kelndorfer, Jennifer McDonell)
Neurological Health Charities of Canada
(Deanna Groetzinger)
(Judy Gargaro, Matheus Wiest)
Ontario Brain Injury Association
(Ruth Wilcock, Lauren Hough)
(Stephanie Cowle)
(Maria Marano, Lorena Araujo)
(Peter Athanasopoulos, Tory Bowman)
Patient and Community Advisory Members
We would like to thank all the individuals who provided feedback on the language and appearance of the infographics we produced. Their input helped to shape the pubic facing outputs.