“One of the biggest barriers we have found is access to plain language information. We are committed to presenting opportunities clearly and consistently, ensuring that no one is left behind,” she continued.
This ambitious study seeks to untangle the complexities of mental health conditions in youth by collecting detailed data on mental and physical health, behavior, functioning, and genetic samples. One of CALM’s primary objectives is to generate new insights into the progression and impact of these conditions. “It’s crucial to constantly ask, ‘Who might we be leaving out?’ When in doubt, we pause, reassess, and adapt to make sure our study reflects the full spectrum of youth experiences,” Edwards emphasized.
What truly sets CALM apart is its Youth Advisory Group, comprised of individuals with lived experience who redefine the understanding of multiple mental health conditions and steer the study based on real-world challenges. The program has six centres across Canada with major leadership in Centre for Addiction and Mental Health (CAMH), including, The Hospital for Sick Children, Children’s Hospital of Eastern Ontario Research Institute, Hamilton Health Sciences Corporation, University of Ottawa Institute of Mental Health Research and University of Calgary.
“Being a part of the CALM Youth Advisory Group has allowed me to reclaim my lived experience as something of value. It has been an eye-opening experience getting to learn from researchers and other Youth Advisors who come with different perspectives on what it means to live with multiple mental health conditions. The CALM summit was an amazing experience as it was the first time I felt like I was a part of the research team and not just a patient,” said Aidan Mohamed, member of the Youth Advisory Group at CALM.
CALM's commitment to improving clinical care and empowering patients and their caregivers extends beyond research. The team has already developed their first knowledge translation resource in collaboration with youth, titled Living with Multiple Mental Health Conditions. This initiative promises more effective and personalized interventions and establishes a new benchmark for research and care in youth mental health.
Learn more about how CALM is redefining the future of youth mental health care.
Header image courtesy of CALM