Updated neurodegenerative disease research data

November 20, 2023

Today, the Ontario Brain Institute released a major data update building on the foundational study led by the Ontario Neurodegenerative Disease Research Initiative (ONDRI). This comprehensive dataset includes screening and baseline data, along with longitudinal data collected at 6, 12, 18, 24, 30, and 36-month follow-up points.

The dataset, meticulously standardized, cleaned, and curated, is poised to enhance the understanding of various neurodegenerative diseases and their impact on individuals and care partners. In an update to the foundational data set released in 2021, the update includes detailed assessments on neuroimaging, retinal thickness, eye-tracking, clinical data, cognitive data, gait and balance, and genetic markers.

With a participant pool of 520 and an equal number of dedicated care partners, the study stands as one of the most robust initiatives in the field, involving 14 participating labs across Ontario.

As part of OBI's continuous efforts to make data open and accessible, the data is a new resource available to the global research community to accelerate research into the underlying causes of neurodegenerative disease.

Explore the dataset on Brain-CODE.

Learn more about ONDRI.